Our Mission - To simply make life better for people with OB

Breathtakers are the only UK registered charity ‘specifically’ supporting Obliterative Bronchiolitis and our aim is to support families affected by this rare disease, raise awareness with doctors and other professionals and support initiatives, which will benefit OB sufferers.

How we do this?

• Provide information leaflets and packs
• Provide one-to-one advice for families, giving practical and emotional support
• Sponsor research and projects, which will contribute to the knowledge and treatment of OB and support initiatives which will help sufferers
• Fundraise to support the charities activities and objectives
• Annual family award. A small grant of up to £500 (see practical support page for details and how to apply)
• Raise awareness with doctors and other professionals
• Facilitate contact between OB families
• Lobby government for changes which will improve services and funding for OB sufferers

What are we currently doing?

• We have been selected by the Genetic and Rare Disease Alliance to be part of three-year Department of Health project, which will establish a route map for Obliterative Bronchiolitis. This will for the first time establish criteria and provide a comprehensive resource when planning care for children with OB in the UK. This will encourage further interest, support and research into OB
• We are working alongside respiratory professionals and other groups to establish a UK working party focusing on rare lung disease
• We are providing information to respiratory centres and medical training establishments to raise awareness of OB
• We are supporting newly diagnosed families with vital information and practical support
• We are expanding our regional services to provide better local support

How can you help us?

To do all these things we rely entirely on the generosity of our supporters. Please visit our website fundraising pages or contact us by email if you feel you can help us by fundraising, giving your time or making donations.

No matter how large or small, we are very grateful for any support you can give.

Please help us to help OB sufferers

Contact: www.breathtakers.co.uk or lynne@breathtakers.org.uk

Who Are We?

Breathtakers Charity was founded in 2007 by Lynne Thompson whose daughter has OB, our regional support workers all either have children with OB or have OB themselves, and so between us we share lots of experiences, ideas and knowledge.

Charity Trustees:

Lynne Thompson - CEO - lynne@breathtakers.org.uk

Stephen Thompson - Treasurer

Rachel Titchener-Secretary

Karen Blakeman- Committee

Regional Contacts

Rachel Titchener - Hampshire and South - rachel@breathtakers.co.uk

Joanne Cameron - Newcastle-Upon-Tyne and North - joanne@breathtakers.co.uk

Emma·Kilner - Yorkshire and North West - emma@breathtakers.co.uk

Colin Bowman - Midlands - colin@breathtakers.co.uk

Medical Advisor

Dr G Connett: Consultant Respiratory Paediatrician, Southampton Hospital

Ambassadors

Kiri Thompson
Adam Cameron

Patron

Tim Emmett - Extreme Sports Personality·